JOIN THE FUN AND GET A SHAVE - THE KID'S WILL LOVE YA FOR IT

St. Baldrick’s Foundation

CHILDHOOD CANCER & NEUROBLASTOMA FACTS

Leukemia - Leukemias are the most common childhood cancers. They account for about 33% of all childhood cancers. Acute lymphocytic leukemia (ALL) and acute myelogenous leukemia (AML) are the most common types of leukemia in children.

Brain and nervous system cancers - Brain and other nervous system cancers are the second most common cancers in children, making up about 21% of childhood cancers.

Neuroblastoma - Neuroblastoma is a form of cancer that starts in certain types of nerve cells found in a developing embryo or fetus. This type of cancer occurs in infants and young children. It is most often found during the first year of life. It is rarely found in children older than 10. This tumor can start anywhere but usually occurs in the belly (abdomen) and is noticed as swelling. It can also cause bone pain and fever. It accounts for about 7% of childhood cancers.

Wilms tumor - Wilms tumor is a cancer that starts in one, or rarely, both kidneys. It is most often found in children about 3 years old, and is uncommon in children older than age 6.

Lymphomas - Non-Hodgkin lymphoma and Hodgkin lymphoma (sometimes called Hodgkin disease, Hodgkin's disease, or Hodgkin's lymphoma), are cancers that start in lymph tissues, such as the tonsils, lymph nodes, and thymus.

Rhabdomyosarcoma - Rhabdomyosarcoma is the most common soft tissue sarcoma in children.

Retinoblastoma - Retinoblastoma is a cancer of the eye. It is rare, accounting for just under 3% of childhood cancers

Bone cancers - Primary bone cancers (cancers that start in the bones) occur most often in children and adolescents.

Osteosarcoma is uncommon, accounting for almost 3% of all new childhood cancer cases in the United States. It often causes no pain or symptoms until swelling starts, but sometimes there is bone pain that keeps getting worse. .

Ewing sarcoma is a less common primary bone cancer which can cause bone pain. It is mostly found in adolescents. It accounts for a little more than 1% of childhood cancers
.

Neuroblastoma:

• Approximately 500 to 1,000 children are diagnosed with neuroblastoma in the United States each year.

• Doctors have known about neuroblastoma for approximately 35 years.

• Neuroblastoma is primarily diagnosed in children ages 14 and under, with most cases in children younger than 5 years.

• The cause of neuroblastoma is unknown, and it is more likely to occur in males than females.

• Neuroblastoma is difficult to diagnose in small children, and its progression is often rapid and painful.

• Neuroblastoma accounts for 8 percent of childhood cancer cases, but is responsible for 15 percent of all childhood cancer deaths.

• One in 330 children will develop cancer by age 20.

• Each school day, 46 children are diagnosed with cancer.

• Each child in the U.S. diagnosed with cancer receives approximately one-sixth of the federal research support allocated to each patient afflicted with AIDS. Yet in 2004, 48 new cases of pediatric AIDS were diagnosed vs. more than 12,000 pediatric cancer cases.

• Although the 5 year survival rate is steadily increasing, one quarter of children will die 5 years from the time of diagnosis

• Cancer accounts for the greatest number of disease deaths of children in the United States and kills more children per year than cystic fibrosis, muscular dystrophy, asthma and AIDS combined

Sources: American Cancer Society, Band of Parents, Texas Oncology Group

http://www.cancer.org/docroot/CRI/CRI_2_6x_Children_and_Cancer.asp http://www.bandofparents.org/neuroblastoma.html
http://www.texasoncology.com/about.aspxid=2750&terms=neuroblastoma

C.O.L.E.'s FOUNDATION

C.O.L.E.'s FOUNDATION
Caring Openly, Loving Eternally

In need of prayer, please click picture to go to C.O.L.E.'S

Grandpa John's Prayer for His Little Buddies

I hear no voice, I feel no touch,
I see no glory bright;
But yet I know that God is near,
In darkness as in light.
God watches ever by my side,
And hears my whispered prayer:
A God of love for a little child
Both night and day does care --- Anonymous

Angel's Honor Roll- A Forever Dedication

- Our Angels -

Austin Melgar, Courtney Saunders, Cooper Riley Proscia, Emily Adamson, Victoria Houston, John Eric Bartels, Kathy Ann Wilkinson, Alara Curran, Spencer Dolling, Marissa Monroe, Olivia Weber, Alexa Aigner, Joe Daily, Ryan Willians, Janie Kashino, Dustin Cobb, Alyssa Chappell, Addison Whipple, Amber Mastey, Katie Krize, Gustavo-Alexis, Kelvin Harper, Maggie Achuff, Kristin Hope, Kahlilla Blyss, Arden Quinn Bucher, Douglas Swift, Max Mikulak, Eliza S, Brandon Loose, Kody Edwards, Brody Hurt, Jay Jay LeBoeuf, Kyah Milne, Nicholas Pagano, Trooper Dante Tareboreli, Carter Wax, Zachary Finestone, Cora McClenahan, Little Roy Gutierrez, Chloe Smith, *Cody Johnson*, Emilio Gravez, Jacob Stovall, Noah Tyler Bell, Shu Qinpet (pet name Xinxin), Jenna Mussolini and Owen Lea, Carson Clark, Juan Santiago Wall, Erik Ludwinski, Layla Grace Marsh, Samuel Thomas Hutchison, Sydney Marie Dudley, Sophie Atay (And Our Big Warrior hero 1st Lt Joseph Helton, USAF - 8 Sept 2009),

-Race Dedication-

  • In Memory of: Samuel Thomas Hutchison, Layla Grace Marsh, Sydney Marie Dudley and Sophie Atay.
  • In Honor of: Jessica Trotter
  • Next Race - TBD
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Gj's Buddies & Angels - Lighting the Way

SAVE THE DATE AND JOIN ME


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Circle the Lake for the Cure

Circle the Lake for the Cure
Houghton Lake MI - 36 hours for the Cure

Email Grandpa John

Monday, March 9, 2009

Far Too Many New Angels....I shall Never Quit!.

As I attempt to catch up with all of the happenings within the world of NB, I am becoming all too well aware that far too many Little Buddies are becoming Angels far too early. My heart aches for all of my Little Buddies, and their families fighting this horrible disease. With so many relapses of late and several new angels, it is it’s hard to figure out the why as there is no reason other than our humanity. My solace resides in my faith knowing they are sitting at the loving Hand of our Blessed Lord for all eternity. My joy is the hope and knowledge that someday I too will join them.

This past Saturday, I learned that a very special person to me (all of my Little Buddies are very special to me) left us to join our ever growing Angelic Choir. Cody Johnson, although I never met you in person, I must know let you know that you are why I started running for my Little Buddies and their families. I had dreams that one day you and your very special dad, Mickey and I would run a marathon or at least a half marathon together; beating all odds, we would conquer the unconquerable.

Well, now that will never be, or will it? I will carry you in my heart, and your name will take its place of honor and in memory on our Angels Rainbow racing shirt. Every mile I run and every race I race will be for you and for your family and for all of my Little Buddies and their families. If I am really lucky maybe one day Grandpa John will not have to run another single mile fighting NB as a cure will have been found. But until that day happens, I again make you and all of my Little Buddies this Promise:

“I will continue to run to raise Funds (I pray so) for research and awareness for the cause until my legs gets too old or tired to run; then I’ll just let my Heavenly Father carry me onward in my racing till the cure is found. I Shall Never ever quit!”

May the Peace of our Heavenly Father grant peace and bestow a special healing potion of love to the families and friends of our newest Angels: Cody Johnson, Emilio Gravez, Jacob Stovall, Noah Tyler Bell, Shu Qinpet (pet name Xinxin) and Jenna Mussolini.

Their names will be added to our Angels Forever memorial and to my Angles Rainbow Racing shirt.

Please inform me if I have misspelled or misnamed any one of our most precious and beautiful Angels, I will correct immediately- Thanks Gj

3 comments:

XinXin Battle Against Neuroblastoma said...

Dear Grandpa,
Thank you very much for doing so many great things for your neuroblastoma kids and family. I appreciate it a lot. Someday hope i can run with you in China or HongKong or in Singapore or in USA. Or fianlly we can ran with my daughter-Xinxin with our heavenly father.let's keep the hope.

Thank you again for your kind heart and your time.
Joy(kouyouwei@gmail.com)
p.s.
I like the name of your Blog--kicking Neuroblastoma's Butt

Anonymous said...

Grandpa John,
We are Emilio Gravez' parents, Christine and Giovani. We received your website from a friend of ours who happened to stumble across it. We would like to get in contact with you, please feel free to email me at christine.gravez@countryfinancial.com. We would like to express our sincere appreciation for adding Emilio to your list of children that you are fighting for.

Please contact us. thank you.
Christine and Gio Gravez

Deqlan said...

Hello Grandpa John, thank you for all you are doing to find the cure for neuroblastoma, its wonderful to know you are running for all the angels and warriors and i was so happy to get your email that you will be running for our son Deqlan, who is ned, and we ask God that he remains this way always ! Please stay in touch, God Bless Samm, Mark Deqlan Logan
www.deqlanhiggins.blogspot.com