JOIN THE FUN AND GET A SHAVE - THE KID'S WILL LOVE YA FOR IT

St. Baldrick’s Foundation

CHILDHOOD CANCER & NEUROBLASTOMA FACTS

Leukemia - Leukemias are the most common childhood cancers. They account for about 33% of all childhood cancers. Acute lymphocytic leukemia (ALL) and acute myelogenous leukemia (AML) are the most common types of leukemia in children.

Brain and nervous system cancers - Brain and other nervous system cancers are the second most common cancers in children, making up about 21% of childhood cancers.

Neuroblastoma - Neuroblastoma is a form of cancer that starts in certain types of nerve cells found in a developing embryo or fetus. This type of cancer occurs in infants and young children. It is most often found during the first year of life. It is rarely found in children older than 10. This tumor can start anywhere but usually occurs in the belly (abdomen) and is noticed as swelling. It can also cause bone pain and fever. It accounts for about 7% of childhood cancers.

Wilms tumor - Wilms tumor is a cancer that starts in one, or rarely, both kidneys. It is most often found in children about 3 years old, and is uncommon in children older than age 6.

Lymphomas - Non-Hodgkin lymphoma and Hodgkin lymphoma (sometimes called Hodgkin disease, Hodgkin's disease, or Hodgkin's lymphoma), are cancers that start in lymph tissues, such as the tonsils, lymph nodes, and thymus.

Rhabdomyosarcoma - Rhabdomyosarcoma is the most common soft tissue sarcoma in children.

Retinoblastoma - Retinoblastoma is a cancer of the eye. It is rare, accounting for just under 3% of childhood cancers

Bone cancers - Primary bone cancers (cancers that start in the bones) occur most often in children and adolescents.

Osteosarcoma is uncommon, accounting for almost 3% of all new childhood cancer cases in the United States. It often causes no pain or symptoms until swelling starts, but sometimes there is bone pain that keeps getting worse. .

Ewing sarcoma is a less common primary bone cancer which can cause bone pain. It is mostly found in adolescents. It accounts for a little more than 1% of childhood cancers.

Neuroblastoma:

• Approximately 500 to 1,000 children are diagnosed with neuroblastoma in the United States each year.

• Doctors have known about neuroblastoma for approximately 35 years.

• Neuroblastoma is primarily diagnosed in children ages 14 and under, with most cases in children younger than 5 years.

• The cause of neuroblastoma is unknown, and it is more likely to occur in males than females.

• Neuroblastoma is difficult to diagnose in small children, and its progression is often rapid and painful.

• Neuroblastoma accounts for 8 percent of childhood cancer cases, but is responsible for 15 percent of all childhood cancer deaths.

• One in 330 children will develop cancer by age 20.

• Each school day, 46 children are diagnosed with cancer.

• Each child in the U.S. diagnosed with cancer receives approximately one-sixth of the federal research support allocated to each patient afflicted with AIDS. Yet in 2004, 48 new cases of pediatric AIDS were diagnosed vs. more than 12,000 pediatric cancer cases.

• Although the 5 year survival rate is steadily increasing, one quarter of children will die 5 years from the time of diagnosis

• Cancer accounts for the greatest number of disease deaths of children in the United States and kills more children per year than cystic fibrosis, muscular dystrophy, asthma and AIDS combined

Sources: American Cancer Society, Band of Parents, Texas Oncology Group

http://www.cancer.org/docroot/CRI/CRI_2_6x_Children_and_Cancer.asp http://www.bandofparents.org/neuroblastoma.html
http://www.texasoncology.com/about.aspxid=2750&terms=neuroblastoma

C.O.L.E.'s FOUNDATION

C.O.L.E.'s FOUNDATION
Caring Openly, Loving Eternally

In need of prayer, please click picture to go to C.O.L.E.'S

Grandpa John's Prayer for His Little Buddies

I hear no voice, I feel no touch,
I see no glory bright;
But yet I know that God is near,
In darkness as in light.
God watches ever by my side,
And hears my whispered prayer:
A God of love for a little child
Both night and day does care --- Anonymous

Angel's Honor Roll- A Forever Dedication


glitter-graphics.com

- Our Angels -

Austin Melgar, Courtney Saunders, Cooper Riley Proscia, Emily Adamson, Victoria Houston, John Eric Bartels, Kathy Ann Wilkinson, Alara Curran, Spencer Dolling, Marissa Monroe, Olivia Weber, Alexa Aigner, Joe Daily, Ryan Willians, Janie Kashino, Dustin Cobb, Alyssa Chappell, Addison Whipple, Amber Mastey, Katie Krize, Gustavo-Alexis, Kelvin Harper, Maggie Achuff, Kristin Hope, Kahlilla Blyss, Arden Quinn Bucher, Douglas Swift, Max Mikulak, Eliza S, Brandon Loose, Kody Edwards, Brody Hurt, Jay Jay LeBoeuf, Kyah Milne, Nicholas Pagano, Trooper Dante Tareboreli, Carter Wax, Zachary Finestone, Cora McClenahan, Little Roy Gutierrez, Chloe Smith, *Cody Johnson*, Emilio Gravez, Jacob Stovall, Noah Tyler Bell, Shu Qinpet (pet name Xinxin), Jenna Mussolini and Owen Lea, Carson Clark, Juan Santiago Wall, Erik Ludwinski, Layla Grace Marsh, Samuel Thomas Hutchison, Sydney Marie Dudley, Sophie Atay (And Our Big Warrior hero 1st Lt Joseph Helton, USAF - 8 Sept 2009),

-Race Dedication-

  • In Memory of: Samuel Thomas Hutchison, Layla Grace Marsh, Sydney Marie Dudley and Sophie Atay.
  • In Honor of: Jessica Trotter
  • Next Race - TBD
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Gj's Buddies & Angels - Lighting the Way

SAVE THE DATE AND JOIN ME


For more widgets please visit www.yourminis.com

Circle the Lake for the Cure

Circle the Lake for the Cure
Houghton Lake MI - 36 hours for the Cure

Email Grandpa John

Click Here

Saturday, April 19, 2008

Race, Training, Blessings...

Race:

Here we are just a little over 7 days away from my first half marathon (The Trail Half Marathon) for the year. Time has such a way of slipping by that I haven’t even given thought to tapering. For those unknowing souls, a taper is a period of time before a race wherein you reduce your mileage to a point where you’re probably running a third of your normal mileage. This is done to make certain you run your race with fresh, well rested “legs,” so to speak. Since I am really not racing the event, but using it as a training run, I’ll be OK; just building up to the Ultra come this September

Training:

Speaking of running and racing, my last training day was this past Thursday. Joanna and I ran some trails out near Northville, MI.; a place called Cass Benton Park. I was not disappointed. The trails were, well, trails and the hills were mountains…..not really, but considering that this was my hill training day, I was not disappointed. We ran somewhere between 4 to 5 miles. So for my training log I’ll carry it as 4.5 miles. Oh, Joanna is a friend of mine. We both were members of Leukemia and Lymphoma Society’s “Team in Training” last year. She is also a walk / run coach for that fine organization.

So here it is: Total Mileage ran for the week: 21.5. Next week will be about the same, and that will include the half marathon, which is 13.1 miles.

Blessings:

Within the last few days, I had the privilege and honor to become acquainted with Julie Weber. I wish it could have been through a personal meeting, but that was not the case; still an honor none the less. Those of you who have been fighting the ravages of neuroblastoma probably already know of Julie and her daughter, Kayla who after fighting the good fight against neuroblastoma became an angel December 2, 2007.

Julie blessed me with permission to use a picture of our little angel Kayla on my racing shirt, the one which I will wear for my ultra. I will run in her memory.

I could go on and on about all of the fantastic work that Julie and her husband (family) are doing in the fight against childhood cancers. But I’ll let her web sites do that for me. She is such a good writer. Also, I am sure that she’ll not mind if I post the picture of Kayla I have put on my shirt. That along with the 108 names I mentioned in previous posts will make this shirt a treasure for me indeed.

Julie's links as I copied from an email from her to me:

http://www.myspace.com/babykaylaweber2

http://www.myspace.com/team_kayla

http://www.believefoundation.org/

http://www.caringbridge.org/visit/kaylaweber

http://babykaylaweber.snapfish.com/snapfish

Angel Kayla: Isn't she the most beautiful Angel...

And folks Julie and husband have some really great news I don't think I am giving any secrets away, but Julie is going to be a Mommy...
Congratulations to Julie and all the family.

Well, I rambled on long enough for tonight, but before I close, need I mention that we could really use your help...won't you please consider making a contribution to either the Band of Parents, or to Kayla Weber's Believe Foundation, a foundation set up honoring Kayla Weber.

I just can't believe how many blessings God is bestowing on me...Thank You.


God Bless
Grandpa John.
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Wednesday, April 16, 2008

Whew! Running a Little Late...

Pardon the pun contained in this posting's title. I've just been running (another pun :) a little behind schedule of keeping the blog updated.

Sooooooooooooo first, some good news. ( I really like good news, don't' you?) Tomorrow I'll be sending off another nice donation of $108.00 to the Band of Parents. So in the last two weeks, the total donated to BoP is: $368.00. I sure hope this continues on...but whatever amount raised is in God's Hands and any amount raised furthers the cause.

And I am in the process of making many new friends. So, here's a really BIG HI to a special little buddy to be of mine, Charlie - HI Ya Charlie.

Now for my training update. Today I ran an easy 4 miles. I'll call it easy since it took me 42:47 to run it. My splits were 21:21 for the first split and 21:26 for the second. I was hoping for negative splits today, like I had for my five mile run on Monday. But the numbers are close enough... I am happy

Mileage ran for the Week: 17

As I wind down for the day, the setting sun reminds me of the beauty that each of us have within: His Beauty. Dwell with Him tonight, have no FEAR; He is with us till the end. In His Love-

God Bless

Gj
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Monday, April 14, 2008

Ham it Up

Every now and then it does the soul good to Ham it up and just enjoy the day and all of the gifts it gives us. So here in all of his Glory is the Ol' … err Ham Gj....
Today's training consisted of a 5mile run and although not fast my time was 49 minutes and a few hundredths of a second. And I ran negative splits (24:46 for the first 2.5 miles; 24:14 for the second) - Now that does the soul wonders for sure. In fact, I was so happy here are a few pics of your truly hamming it up for Missus Gj. I wonder if she'll dance in the dirt with me

Nope! Missus told me that any if there were any dirt dancing to be done, I was the one that had to do it..Alone!

Hmmmmm..maybe if I show her my muscles?....

No Deal!

OK, One last try..Hunny, would you dance with me


Finally, she said yes. But I have to shower first..so I'll see you all later cuz I'm a going dancing with my Sweetie.


BUT..............................................................................


Before I go...............................................................


Don't Forget......

The real purpose of this Blog......If you haven't done so yet, please join me in supporting "The Band of Parents" in their quest to find a cure for Neuroblastoma. Now that is definitely something which warms the (my) Heart - to find a cure.


Till later....

Hug your loved ones and Tickle your Heart...

God Bless,


Gj.

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Sunday, April 13, 2008

Ever Going Forward -

I would like to thank those of you who have been providing comments about our blog. I humbly accept the thanks given and would like to return thanks for the links to other blogs containing information and updates about the children. They are our reason to ever strive forward in finding the cure. Although I have not, in return, made comments I promise I will. So far I visited Cody’s, Jeremy’s and Laura’s blogs. So I may visit often, I am making them a favorites in my links. And if you provide me with a link, I promise to visit and make it a favorite too.

As for the training that too is going forward. As mentioned in yesterdays post I got some new running shoes (Asics Gel 2130’s) and I did have to try them. So this morning I ran a little over 8 miles in them and to paraphrase Tony the Tiger, “they felt great.” The comments below are out of my training log:

14-Apr

Today’s training run was on a TM and consisted of a 1.5 hour run with a 5 minute warm up, and 5 minute cool down The reason the treadmill was used was to help develop mental focus.

Time
1.5 hours
Mileage Run
8.23
Shoes
Asics Gel 2130

Perceived Intensity: Moderately Intense. All in all a good training run. The new Asics felt wonderful.

Total Weekly Mileage: 8.23

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Missus Gj just called out that supper is ready, so till later...Always remaining in my thoughts and prayers

God Bless,

Gj
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