JOIN THE FUN AND GET A SHAVE - THE KID'S WILL LOVE YA FOR IT

St. Baldrick’s Foundation

CHILDHOOD CANCER & NEUROBLASTOMA FACTS

Leukemia - Leukemias are the most common childhood cancers. They account for about 33% of all childhood cancers. Acute lymphocytic leukemia (ALL) and acute myelogenous leukemia (AML) are the most common types of leukemia in children.

Brain and nervous system cancers - Brain and other nervous system cancers are the second most common cancers in children, making up about 21% of childhood cancers.

Neuroblastoma - Neuroblastoma is a form of cancer that starts in certain types of nerve cells found in a developing embryo or fetus. This type of cancer occurs in infants and young children. It is most often found during the first year of life. It is rarely found in children older than 10. This tumor can start anywhere but usually occurs in the belly (abdomen) and is noticed as swelling. It can also cause bone pain and fever. It accounts for about 7% of childhood cancers.

Wilms tumor - Wilms tumor is a cancer that starts in one, or rarely, both kidneys. It is most often found in children about 3 years old, and is uncommon in children older than age 6.

Lymphomas - Non-Hodgkin lymphoma and Hodgkin lymphoma (sometimes called Hodgkin disease, Hodgkin's disease, or Hodgkin's lymphoma), are cancers that start in lymph tissues, such as the tonsils, lymph nodes, and thymus.

Rhabdomyosarcoma - Rhabdomyosarcoma is the most common soft tissue sarcoma in children.

Retinoblastoma - Retinoblastoma is a cancer of the eye. It is rare, accounting for just under 3% of childhood cancers

Bone cancers - Primary bone cancers (cancers that start in the bones) occur most often in children and adolescents.

Osteosarcoma is uncommon, accounting for almost 3% of all new childhood cancer cases in the United States. It often causes no pain or symptoms until swelling starts, but sometimes there is bone pain that keeps getting worse. .

Ewing sarcoma is a less common primary bone cancer which can cause bone pain. It is mostly found in adolescents. It accounts for a little more than 1% of childhood cancers.

Neuroblastoma:

• Approximately 500 to 1,000 children are diagnosed with neuroblastoma in the United States each year.

• Doctors have known about neuroblastoma for approximately 35 years.

• Neuroblastoma is primarily diagnosed in children ages 14 and under, with most cases in children younger than 5 years.

• The cause of neuroblastoma is unknown, and it is more likely to occur in males than females.

• Neuroblastoma is difficult to diagnose in small children, and its progression is often rapid and painful.

• Neuroblastoma accounts for 8 percent of childhood cancer cases, but is responsible for 15 percent of all childhood cancer deaths.

• One in 330 children will develop cancer by age 20.

• Each school day, 46 children are diagnosed with cancer.

• Each child in the U.S. diagnosed with cancer receives approximately one-sixth of the federal research support allocated to each patient afflicted with AIDS. Yet in 2004, 48 new cases of pediatric AIDS were diagnosed vs. more than 12,000 pediatric cancer cases.

• Although the 5 year survival rate is steadily increasing, one quarter of children will die 5 years from the time of diagnosis

• Cancer accounts for the greatest number of disease deaths of children in the United States and kills more children per year than cystic fibrosis, muscular dystrophy, asthma and AIDS combined

Sources: American Cancer Society, Band of Parents, Texas Oncology Group

http://www.cancer.org/docroot/CRI/CRI_2_6x_Children_and_Cancer.asp http://www.bandofparents.org/neuroblastoma.html
http://www.texasoncology.com/about.aspxid=2750&terms=neuroblastoma

C.O.L.E.'s FOUNDATION

C.O.L.E.'s FOUNDATION
Caring Openly, Loving Eternally

In need of prayer, please click picture to go to C.O.L.E.'S

Grandpa John's Prayer for His Little Buddies

I hear no voice, I feel no touch,
I see no glory bright;
But yet I know that God is near,
In darkness as in light.
God watches ever by my side,
And hears my whispered prayer:
A God of love for a little child
Both night and day does care --- Anonymous

Angel's Honor Roll- A Forever Dedication


glitter-graphics.com

- Our Angels -

Austin Melgar, Courtney Saunders, Cooper Riley Proscia, Emily Adamson, Victoria Houston, John Eric Bartels, Kathy Ann Wilkinson, Alara Curran, Spencer Dolling, Marissa Monroe, Olivia Weber, Alexa Aigner, Joe Daily, Ryan Willians, Janie Kashino, Dustin Cobb, Alyssa Chappell, Addison Whipple, Amber Mastey, Katie Krize, Gustavo-Alexis, Kelvin Harper, Maggie Achuff, Kristin Hope, Kahlilla Blyss, Arden Quinn Bucher, Douglas Swift, Max Mikulak, Eliza S, Brandon Loose, Kody Edwards, Brody Hurt, Jay Jay LeBoeuf, Kyah Milne, Nicholas Pagano, Trooper Dante Tareboreli, Carter Wax, Zachary Finestone, Cora McClenahan, Little Roy Gutierrez, Chloe Smith, *Cody Johnson*, Emilio Gravez, Jacob Stovall, Noah Tyler Bell, Shu Qinpet (pet name Xinxin), Jenna Mussolini and Owen Lea, Carson Clark, Juan Santiago Wall, Erik Ludwinski, Layla Grace Marsh, Samuel Thomas Hutchison, Sydney Marie Dudley, Sophie Atay (And Our Big Warrior hero 1st Lt Joseph Helton, USAF - 8 Sept 2009),

-Race Dedication-

  • In Memory of: Samuel Thomas Hutchison, Layla Grace Marsh, Sydney Marie Dudley and Sophie Atay.
  • In Honor of: Jessica Trotter
  • Next Race - TBD
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Gj's Buddies & Angels - Lighting the Way

SAVE THE DATE AND JOIN ME


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Circle the Lake for the Cure

Circle the Lake for the Cure
Houghton Lake MI - 36 hours for the Cure

Email Grandpa John

Click Here

Monday, June 2, 2008

Neuroblastoma –Did You Know; Another Type of Hero; Weekend Training

Neuroblastoma-Did You Know?: I know many of my “Little Buddies” and their parents visit our site here and already know about what I am going to post, but this is for our visitors who might not know about neuroblastoma, or childhood cancers. Every so often I’ll post different facts about these dreaded diseases and their impact to the lives of our all of our Buddies

Did You Know:

· Each school day, 46 children are diagnosed with cancer
· Childhood cancer is the number one disease killer in children
· Neuroblastoma is the most common extra cranial solid tumor cancer in children.
· Every 16 hours a child with neuroblastoma dies.
· There are 15 children diagnosed with cancer for every one child diagnosed with pediatric AIDS. Yet, the U.S. invests approximately $595,000 for research per victim of pediatric AIDS and only $20,000 for each victim of childhood cancer.
· The National Cancer Institute’s (NCI) federal budget was $4.6 billion. Of that, breast cancer received 12%, prostate cancer received 7%, and all 12 major groups of pediatric cancers combined received less than 3%.
· Cancer kills more children than any other disease, more than Asthma, Cystic Fibrosis, Diabetes and Pediatric AIDS combined.

Another Type of Hero: His name is Sam Seltzer, small of stature, bent and wrinkled with age, with a voice that sounds like a choir, very melodic, and a very wise man to be sure. When you first meet him you’d wonder why he sings all the time, or why that impish grin captures your heart so. Then you happen to notice a small tattoo on his arm, but it’s not any tattoo, it a tattoo made up of only numbers. You see, Sam is a Holocaust survivor and I have the privilege of meeting him and I am just beginning to know him in the slightest meaning of the word. We go to the same gym a few time a week and I find the time I spend with him to be a blessing to my heart; already I love him. I must remember to tell him that the next time we meet.

Pre-world War II Sam lived in Poland, and during the war he survived 15 Nazi slave labor and death camps, to include Auschwitz. Sam also has a book out; it’s title “Fences That Kill” written by Dr. Richard B Traitel and Martha Seltzer as told to them told by Sam. I haven’t had a chance to pick the book up yet, but I plan on doing so this week or so.. I’ll share with you what I find; yes he is a Hero to me.

Thanks you Sam for having enriched my life beyond measure.

Oh, why does Sam sing all the time – It’s simple he loves life and is happy to be alive.

Weekend’s Training: This past weekend I logged 22 glorious miles: 14 Miles on Saturday and 8 on Sunday. Weekly Total: 34 miles.

Saturday’s run began with a soggy 3 mile trail run. The trails weren’t too bad at the beginning of the run, but as I got closer to the lower wetland areas having soggy feet and muddy shoe took on a whole new meaning. It seem that Friday night’s rain storm must have been localized right over the trial I was running. It was fun I was really having a blast, but I decided after the 3 that I plenty of fun for the day and made my way out to the trail along Hines Park Drive; a nice blacktop path and it was dry.

Ahh! So nice to be running on dry land, but therein was a problem; it seems my trail shoes really aren’t made for black top and the pounding this ol’ 207 lb body could give them. I think it was around mile 12 or so when I heard a scream. Looking around I saw no one yet I distinctly heard a scream….Wait a minute! It’s my legs, shins, calves and quads hollering in unison STOP! Did I listen to them? YES I did, I stopped, but only long enough to rub some of the stiffness and soreness out; to avoid further harm though I did the run walk routine. That is, I ran for all of 15 seconds, then walked for a minute (LoL) and repeated that sequence till I finished my 14 for the day. It was a very pleasant experience for sure.

Sundays 8 miles was a very nice recovery run. The weather was nice and the run very relaxing
I am most definitely looking forward to this week’s increased mileage.

And remember the reason for this blog: Please Say Yes to Grandpa John and make a generous donation today to the Band of Parents – Thanks

How long should you try? Until.
Jim Rohn

God Bless

Gj
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