JOIN THE FUN AND GET A SHAVE - THE KID'S WILL LOVE YA FOR IT

St. Baldrick’s Foundation

CHILDHOOD CANCER & NEUROBLASTOMA FACTS

Leukemia - Leukemias are the most common childhood cancers. They account for about 33% of all childhood cancers. Acute lymphocytic leukemia (ALL) and acute myelogenous leukemia (AML) are the most common types of leukemia in children.

Brain and nervous system cancers - Brain and other nervous system cancers are the second most common cancers in children, making up about 21% of childhood cancers.

Neuroblastoma - Neuroblastoma is a form of cancer that starts in certain types of nerve cells found in a developing embryo or fetus. This type of cancer occurs in infants and young children. It is most often found during the first year of life. It is rarely found in children older than 10. This tumor can start anywhere but usually occurs in the belly (abdomen) and is noticed as swelling. It can also cause bone pain and fever. It accounts for about 7% of childhood cancers.

Wilms tumor - Wilms tumor is a cancer that starts in one, or rarely, both kidneys. It is most often found in children about 3 years old, and is uncommon in children older than age 6.

Lymphomas - Non-Hodgkin lymphoma and Hodgkin lymphoma (sometimes called Hodgkin disease, Hodgkin's disease, or Hodgkin's lymphoma), are cancers that start in lymph tissues, such as the tonsils, lymph nodes, and thymus.

Rhabdomyosarcoma - Rhabdomyosarcoma is the most common soft tissue sarcoma in children.

Retinoblastoma - Retinoblastoma is a cancer of the eye. It is rare, accounting for just under 3% of childhood cancers

Bone cancers - Primary bone cancers (cancers that start in the bones) occur most often in children and adolescents.

Osteosarcoma is uncommon, accounting for almost 3% of all new childhood cancer cases in the United States. It often causes no pain or symptoms until swelling starts, but sometimes there is bone pain that keeps getting worse. .

Ewing sarcoma is a less common primary bone cancer which can cause bone pain. It is mostly found in adolescents. It accounts for a little more than 1% of childhood cancers
.

Neuroblastoma:

• Approximately 500 to 1,000 children are diagnosed with neuroblastoma in the United States each year.

• Doctors have known about neuroblastoma for approximately 35 years.

• Neuroblastoma is primarily diagnosed in children ages 14 and under, with most cases in children younger than 5 years.

• The cause of neuroblastoma is unknown, and it is more likely to occur in males than females.

• Neuroblastoma is difficult to diagnose in small children, and its progression is often rapid and painful.

• Neuroblastoma accounts for 8 percent of childhood cancer cases, but is responsible for 15 percent of all childhood cancer deaths.

• One in 330 children will develop cancer by age 20.

• Each school day, 46 children are diagnosed with cancer.

• Each child in the U.S. diagnosed with cancer receives approximately one-sixth of the federal research support allocated to each patient afflicted with AIDS. Yet in 2004, 48 new cases of pediatric AIDS were diagnosed vs. more than 12,000 pediatric cancer cases.

• Although the 5 year survival rate is steadily increasing, one quarter of children will die 5 years from the time of diagnosis

• Cancer accounts for the greatest number of disease deaths of children in the United States and kills more children per year than cystic fibrosis, muscular dystrophy, asthma and AIDS combined

Sources: American Cancer Society, Band of Parents, Texas Oncology Group

http://www.cancer.org/docroot/CRI/CRI_2_6x_Children_and_Cancer.asp http://www.bandofparents.org/neuroblastoma.html
http://www.texasoncology.com/about.aspxid=2750&terms=neuroblastoma

C.O.L.E.'s FOUNDATION

C.O.L.E.'s FOUNDATION
Caring Openly, Loving Eternally

In need of prayer, please click picture to go to C.O.L.E.'S

Grandpa John's Prayer for His Little Buddies

I hear no voice, I feel no touch,
I see no glory bright;
But yet I know that God is near,
In darkness as in light.
God watches ever by my side,
And hears my whispered prayer:
A God of love for a little child
Both night and day does care --- Anonymous

Angel's Honor Roll- A Forever Dedication

- Our Angels -

Austin Melgar, Courtney Saunders, Cooper Riley Proscia, Emily Adamson, Victoria Houston, John Eric Bartels, Kathy Ann Wilkinson, Alara Curran, Spencer Dolling, Marissa Monroe, Olivia Weber, Alexa Aigner, Joe Daily, Ryan Willians, Janie Kashino, Dustin Cobb, Alyssa Chappell, Addison Whipple, Amber Mastey, Katie Krize, Gustavo-Alexis, Kelvin Harper, Maggie Achuff, Kristin Hope, Kahlilla Blyss, Arden Quinn Bucher, Douglas Swift, Max Mikulak, Eliza S, Brandon Loose, Kody Edwards, Brody Hurt, Jay Jay LeBoeuf, Kyah Milne, Nicholas Pagano, Trooper Dante Tareboreli, Carter Wax, Zachary Finestone, Cora McClenahan, Little Roy Gutierrez, Chloe Smith, *Cody Johnson*, Emilio Gravez, Jacob Stovall, Noah Tyler Bell, Shu Qinpet (pet name Xinxin), Jenna Mussolini and Owen Lea, Carson Clark, Juan Santiago Wall, Erik Ludwinski, Layla Grace Marsh, Samuel Thomas Hutchison, Sydney Marie Dudley, Sophie Atay (And Our Big Warrior hero 1st Lt Joseph Helton, USAF - 8 Sept 2009),

-Race Dedication-

  • In Memory of: Samuel Thomas Hutchison, Layla Grace Marsh, Sydney Marie Dudley and Sophie Atay.
  • In Honor of: Jessica Trotter
  • Next Race - TBD
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Gj's Buddies & Angels - Lighting the Way

SAVE THE DATE AND JOIN ME


For more widgets please visit www.yourminis.com

Circle the Lake for the Cure

Circle the Lake for the Cure
Houghton Lake MI - 36 hours for the Cure

Email Grandpa John

Thursday, July 31, 2008

A Remembrance and Honor; Updated – Photos and Angels Rainbow Memory shirt, & Camping

A Remembrance and Honor: As I ready myself for Saturday’s run I wish to hold high the memory of all my Little Buddies who are now Angels especially: Olivia Weber, Alexa Aigner, Joe Daily, Ryan Williams, and Dustin Cobb. As I run the Legend in their Memory, I am also running to honor Little Buddies “Justin Gaudineer, Jackson Boyd, Nick Franca, Kerry Leary, Serena Lambert, Sammy Klimas, and Melina Riniolo. I’ll be carrying all of them with me on race day.

Updated – Photos and Angels Rainbow Memory shirt: The pictures below are of the photos and shirt I will be wear on Saturday for the 10 mile race.

Camping: Missus Gj and I will be camping at the state park where the race is being held this weekend. We both are looking forward to a couple of days of relaxation. Nah! I don’t think that will happen, but we are excited that we are getting away for a couple of days. It’s been quite a while since we’ve be been camping, but I never remember it being so labor intensive…Oh well J I am sure we’ll have a few stories to share with you when we get back.
“Great Men Cultivate Love…only little men cherish a spirit of hatred”
Booker T Washington
God Bless ,Till Later
Gj

Thursday, July 24, 2008

Update to Race Dedication & Poll Question

Race Dedication Updated - Welcome Melina; we'll have fun race day.

Poll Question - Please take a little time to answer our poll question: Should I allow advertising on the blog to earn funds as doantions to the Band of Parents? If the poll affirms the question I'll take the necesary steps to garner advertisers...monies not much but a little at a time over time can really add up.

For some strange reason I like this message ----

God Bless,

Gj


Monday, July 21, 2008

From the Border to the Bridge- Our Other Blog - An Update

To see a map of my proposed route, please follow the link above (clik on the picture of the Mackinaw Bridge) to our other Blog

"From the Border to the Bridge - Fighting Childhood Cancer - a 330 mile Running Odyssey"

Now it's off for a little Crosss training.


Till Later

God Bless,

Gj

Sunday, July 20, 2008

Angels Update, Touched Again & Update to our Angel's Honor Roll- A Forever Dedication and Race Dedication Listing

Angels Update, Touched Again: A mist filled the air, as I ran along on my 10 mile training run this morning. I know the weather man had forecasted rain, but it was supposed to be later in the morning, not at 8am. Memories flooded my soul; the last time I ran in the rain I communed with our Angels. Would it happen again? Sure as rain is wet, a bunny hopped by, then another, a mother duck waddled along with 6 or 7 ducklings, and off in the distance a ground hog scurried along to hide in his hole. But what’s this, a lone butterfly, in the rain, fluttering by my cheek. Surely I am, again, being touch by our Angels. In their way, they are letting me know that the Angelic choir gained two new members this past week and that all is well in Heaven. Janie Kashino and Dustin Cobb sing a sweet refrain for us, forever pain free in the bosom of our Heavenly Father.

My condolences and prayers go out to the Kashino and Cobb families. May His Grace comfort all of you.

Updated Angel's Honor Roll- A Forever Dedication and Race Dedication Listing: Today I added Janie and Dustin to our Angels Honor Roll, and added Serena Lambert to our Race Dedication Listing. I do have a couple of more Buddies to add, but I am waiting for the Ok from the parents.

Below is a picture of the update to our Angels Rainbow Racing shirt.

Fighting Childhood Cancer ---

--- "Happy are those who dream dreams and are ready to pay the price to make them come true."
Leon J. Suenes

God Bless You. May You Slumber Restfully in His Heart Tonight and Always,

Gj

Saturday, July 12, 2008

An Angelic Cleansing, Missus Gj Day and MY Garden

An Angelic Cleansing: Today I was at mile 14 of a 24 mile training run when it just decided to rain, not just a light sprinkle, but a heavy down pour; I was completed soaked in less than a minute. Oh well, I do enjoy running in the rain so I continued on…until Thunder reared its ugly head. Now, I do enjoy listening to thunder and truth be told watching electrical storms. But, I do not run in such! So I headed home, only two miles away.

As I headed home, the rain continued its rhythmic beat, drenching my soul with bliss rarely felt. It was then I remembered the last time I felt so; it was our Angels again cleansing my spirit with their tears. These were not tears of sorrow, rather tears of joy experiencing a pain free existence unknown to us earth bound creatures. The thunder I heard was merely the angelic band keep rhythm for the choir welcoming the newest member to heaven. Sing and play on Joe Daily, and Ryan Williams, as we wait our turn to join you
.

Missus Gj Day: For all of her support and love, which without I would never be able to accomplish anything, I proclaim tomorrow, Sunday July 13, 2008 Missus Gj Day. To honor Missus Gj, I further proclaim that she will do no work around the house. I will do her daily chores. I will also take her to a movie of her choice and to dinner at a restaurant of her choosing. Thank you for loving me so much honey, I do love you so. The flowers are for you Sweetie

My Garden: Oh, how I love the beauty of flowers. Their aroma intoxicating and each provide a floral display so pleasing to the eye. My garden, it is where I commune with my Creator daily.

Please join and enjoy with me what I see very day.







































Hold Dearly those you Love for they are precious beyond measure.
God Bless,
Gj

Thursday, July 3, 2008

How Time Flies, Picture Mailings, Building our Honor Team, T shirt Layout

How Time Flies - Wow, it is truly amazing how quickly time flies. Its’ been almost 10 days since I last updated our blog. I apologize for such delay. Yet, not one to offer excuse I must say that the tempo at work increased, and my home chore list really needed tackling; so here I sit offering excuses galore J In the future, I’ll really try to be more punctual in updating our blog.

Pictures Mailings - About 2 week ago I promised to send out the pictures I wore at the last race to my honor buddies. Well, I didn’t forget. I was waiting for some race pictures I ordered to come in from the photographer and they still haven’t arrived. So, over the weekend, I’ll be mailing your pictures out to you. When the other pictures do arrive, I’ll be putting them in the post or will email you an electronic copy – Stay tuned.

Building our Honor Team – I am in the process of building our honor team for my next race, “The Legend” There are so many Little Buddies I want to run this race in honor of that I may over-look a few. So if you’d like Ol’ Grandpa John to run this race (and wear your picture during the race) in your honor, please contact me and let me know. I really wish I didn’t have so many Little Buddies, but hey, isn’t that why I am running? We’ll Kick Neuroblastoma’s butt for sure; it’s not if, but when!

T-Shirt Layout –My Band of Parents friend, Carolyn, is working with our t shirt customizer (Unspoken Love- please visit Terry’s site, it’s most wonderful. Use link to the right- thanks) on our design and should have some more information for us with the next few weeks. These shirts really rock and tell the story. They will be cotton, but I am also working on getting tech shirts made for us runners too – so this is another “Stay Tuned!”

“Courage, it would seem, is nothing less than the power to overcome danger, misfortune, fear, injustice, while continuing to affirm inwardly that life with all its sorrows is good; that everything is meaningful even if in a sense beyond our understanding; and that there is always tomorrow” Dorothy Thompson

God Bless and Slumber Restfully in His Arms

Gj

Monday, June 23, 2008

Angel’s Honor Roll – A permanent Dedication; Where have I been & Training update

Angel’s Honor Roll – A permanent Dedication: It is so important to me that the memory of our angels not be forgotten that I have decided to begin the “Angel’s Honor Roll – A permanent Dedication” list. This list will contain the names all of our Angels (that I have been made aware of) that either have had a race run in their memory or will have one run for them. They will never be forgotten!

Where have I been? From Tuesday through Friday of Last week Ol’ Gj was ether fighting some bug, or so run down from over training (Missus Gj’s contention anyway) that his system decided to let him know that he had to slow down just a tad. You see, early Tuesday evening last, I did some very aggressive speed work after which I felt Ok, but later that night and Wednesday morning, Ol Gj felt very ill, nauseous and very weak. If fact, I made all of 30 minutes at work before I decided to go home. .. Fast forward several days… Saturday saw me fit enough to run (waddle) my long run (20 miles) for the week. I feel fine now, I just don’t know about last week though…really strange. Regardless of Missus Gj’s contention, I swear it had to be the chicken salad I ate for lunch last Tuesday. but I’ve been married long enough to know that Missus Gj is always right :) It’s really great to have someone love you so much.

Training Update: I resumed training after a brief illness of last week. Last week I was to train 48 miles but only got 34 in. This week is a down week so my system will get more rest; total mileage scheduled for this week – 36 miles.

Total Mileage To Date: 264 miles

We are not human beings on a spiritual journey. We are spiritual beings on a human journey.- Stephen Covey

God Bless, Rest in His Arms Safely tonight, always and in all ways.

Gj

Monday, June 16, 2008

The Flirts With Dirt 10K Race Report

This Race was Dedicated to all of My Little Buddies, their Families and especially All of Our Angels guarding over us.

"When I do the best I can with what I have, then I have won my race."
Jay Foonberg, 72 year old runner


Feeling somewhat long of tooth over my 10K performance this past Saturday, I received the above Daily Quote from RunnersWorld.com this morning. What a wonderful freeing perspective to have! Admittedly, I thought I had that same perspective but maybe not quite where it matters: in my heart, not my mind!

So, based on its meaning, I asked myself this question: “Did I do the best I could with what I have?” Of course, my answer is yes. I did my best, I did not cheat myself. Therefore, it is with a smile on my face and truth in my heart that I tell you this past Saturday I ran the “Flirts with Dirt” 10K race. My time: 1:10:07, for a pace of 11:18 per mile; now on to the report.
Report: Flirts with Dirt 10K

The 5K started at 7:30am, the 10K at 8am, and here it was 8:15 and still no start. From what I heard, the race director was waiting those few extra minutes to allow the hard core 5Ker’s the opportunity to run the 10K also (several of the younger runners had signed up for both races). Just as soon as that thought crossed my mind, suddenly without warning, at least none what I heard, the race started; we were off.

As mentioned in the race description we started the race going down a sledding hill, around a soccer field at the bottom, and down a dirt road toward the head of the trail. Those of us in the back of the pack heard someone holler “if you’re going to pass you’d better do it now, this is as wide as the trail gets” Since the trail was only 5 or 6 feet or so wide at that point, I began to wonder just how narrow the trail really was. I soon found out.

What this? I am already walking, and not even a mile has passed. Then I heard someone holler, “A snake, it’s a snake!” No, not the reptile, but the trail; narrow of girth and just a winding as a snake slithering through the grass, runners were backed up for about 50, no maybe 70 deep, and it only got worse from there on. So, I zoned out.

Slowly, but most wonderfully, the miles passed, or was it my Angels carrying me over the bunched up gang of runners? I do believe so. Snaking trails, though over grown with weeds bent over, were well marked. Lining the trail, small ponds dotted the inner forest landscape here and there, and I think we crossed over the same stream twice, or was it three times. The surroundings captivated my heart, when suddenly a warning scream woke me from my dream. “Ahhhhhh, Lookout! Mud, I just fell and busted my butt” (I cannot repeat the runner’s actual words). I started to chuckle, thinking who cares as long as you’re not hurt. Mud is very becoming a trail race for sure. Besides, my “Dirty Girl” gaiters were doing their job.

Awakening from my trace like state, I noticed I passed several other runners; how so, I do not know. I was at mile marker 6; two tenths of mile to go, I started my kick.

Rounding the final bending, about 100 yards long and at about 10 or 15 degree incline was the back side of the dreaded sledding hill. I didn’t care, no pain I felt, only the burn of my quads and calves as they did their job. Oh how I love it. We crossed the finish line; all of my Little Buddies and Angels are winners, even if Ol’ Gj didn’t take first place! Below are a couple of pictures a friend of mine took

Here's Ol Gj at the finish line. Notice the pictures around my neck? They are all of the Little Buddies I ran the race for (actually all of them, but I only had these pictures I could wear). I will be wearing more throughout my scheduled races. (Our angels names are on our Angels Rainbow shirt underneath)



Here's one of our Angels Rainbow shirt. If you look closely you can make out some of the names (Click on the picture for a larger view)

Speaking of my Little Buddies and our Angels, would you please consider making a generous donation today to the Band of Parents? If you prefer to make an on line donation just follow their link above, oOr if you rather you can mail your donation to me and I'll forward it to the appropriate people (Please make sure to make all checks payable to the Band of Parents and do not send cash).

Till later, God Bless and Rest Peacefully in His Arms.
Gj

Friday, June 13, 2008

Update to Race dedication - A New Angel

Update to Race Dedication - A New Angel: As I read my email this morning I learned of another one my Little Buddies earning their Angel Wings. Sing sweetly down to me Marissa Monroe. May your spirit sing the soft refrain of a never ending love for our Heavenly Father. Our comfort is in knowing that you are now pain free for eternity singing in a most blessed place- Heaven.
The race I am running tomorrow will be in dedicated to you. Below is a picture of our Angels Rainbow Shirt. That is my racing shirt and I will be wearing it tomorrow for all to see

Now you'll be running every race I run along with all of our other Angels..
Well, I have to go for now till later
God Bless
Grandpa John
PS: Please remember what I look like since when my time comes to go home the first thing I want to do is give you a hug :) but I won't know what you look like in your heavenly body - OK (Well, I gotta hug Jesus first, but I think you understand)

Wednesday, June 11, 2008

Added Link; Update to Race Dedication & Training Update

Added link to the Band of Parents Fund Raiser Slide Show – Pictures taken during a fund raiser for our Precious children; folks, they are the reason I am going forward and will not quit! Every day my “Little Buddies” become more and more precious to me.

Wont’ you please help put an end to neuroblastoma! Become a hero and a voice for the voiceless join Grandpa John: Together we can do it!!!!

Update to Race Dedication – today I added Ber, Elizabeth, Marissa, and Kerry to the names list for those “Little Buddies” I am dedicating this Saturday’s race to.; with so much support I should win my Age Group; not likely, but I sure will have my buddies within my heart and that’s even better that winning an age group award.

Training Update will be made after my race this weekend.


Although the world is very full of suffering, it is also full of the overcoming of it
Helen Keller

Till Later, Good Night and God Bless.

Gj