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St. Baldrick’s Foundation

CHILDHOOD CANCER & NEUROBLASTOMA FACTS

Leukemia - Leukemias are the most common childhood cancers. They account for about 33% of all childhood cancers. Acute lymphocytic leukemia (ALL) and acute myelogenous leukemia (AML) are the most common types of leukemia in children.

Brain and nervous system cancers - Brain and other nervous system cancers are the second most common cancers in children, making up about 21% of childhood cancers.

Neuroblastoma - Neuroblastoma is a form of cancer that starts in certain types of nerve cells found in a developing embryo or fetus. This type of cancer occurs in infants and young children. It is most often found during the first year of life. It is rarely found in children older than 10. This tumor can start anywhere but usually occurs in the belly (abdomen) and is noticed as swelling. It can also cause bone pain and fever. It accounts for about 7% of childhood cancers.

Wilms tumor - Wilms tumor is a cancer that starts in one, or rarely, both kidneys. It is most often found in children about 3 years old, and is uncommon in children older than age 6.

Lymphomas - Non-Hodgkin lymphoma and Hodgkin lymphoma (sometimes called Hodgkin disease, Hodgkin's disease, or Hodgkin's lymphoma), are cancers that start in lymph tissues, such as the tonsils, lymph nodes, and thymus.

Rhabdomyosarcoma - Rhabdomyosarcoma is the most common soft tissue sarcoma in children.

Retinoblastoma - Retinoblastoma is a cancer of the eye. It is rare, accounting for just under 3% of childhood cancers

Bone cancers - Primary bone cancers (cancers that start in the bones) occur most often in children and adolescents.

Osteosarcoma is uncommon, accounting for almost 3% of all new childhood cancer cases in the United States. It often causes no pain or symptoms until swelling starts, but sometimes there is bone pain that keeps getting worse. .

Ewing sarcoma is a less common primary bone cancer which can cause bone pain. It is mostly found in adolescents. It accounts for a little more than 1% of childhood cancers.

Neuroblastoma:

• Approximately 500 to 1,000 children are diagnosed with neuroblastoma in the United States each year.

• Doctors have known about neuroblastoma for approximately 35 years.

• Neuroblastoma is primarily diagnosed in children ages 14 and under, with most cases in children younger than 5 years.

• The cause of neuroblastoma is unknown, and it is more likely to occur in males than females.

• Neuroblastoma is difficult to diagnose in small children, and its progression is often rapid and painful.

• Neuroblastoma accounts for 8 percent of childhood cancer cases, but is responsible for 15 percent of all childhood cancer deaths.

• One in 330 children will develop cancer by age 20.

• Each school day, 46 children are diagnosed with cancer.

• Each child in the U.S. diagnosed with cancer receives approximately one-sixth of the federal research support allocated to each patient afflicted with AIDS. Yet in 2004, 48 new cases of pediatric AIDS were diagnosed vs. more than 12,000 pediatric cancer cases.

• Although the 5 year survival rate is steadily increasing, one quarter of children will die 5 years from the time of diagnosis

• Cancer accounts for the greatest number of disease deaths of children in the United States and kills more children per year than cystic fibrosis, muscular dystrophy, asthma and AIDS combined

Sources: American Cancer Society, Band of Parents, Texas Oncology Group

http://www.cancer.org/docroot/CRI/CRI_2_6x_Children_and_Cancer.asp http://www.bandofparents.org/neuroblastoma.html
http://www.texasoncology.com/about.aspxid=2750&terms=neuroblastoma

C.O.L.E.'s FOUNDATION

C.O.L.E.'s FOUNDATION
Caring Openly, Loving Eternally

In need of prayer, please click picture to go to C.O.L.E.'S

Grandpa John's Prayer for His Little Buddies

I hear no voice, I feel no touch,
I see no glory bright;
But yet I know that God is near,
In darkness as in light.
God watches ever by my side,
And hears my whispered prayer:
A God of love for a little child
Both night and day does care --- Anonymous

Angel's Honor Roll- A Forever Dedication


glitter-graphics.com

- Our Angels -

Austin Melgar, Courtney Saunders, Cooper Riley Proscia, Emily Adamson, Victoria Houston, John Eric Bartels, Kathy Ann Wilkinson, Alara Curran, Spencer Dolling, Marissa Monroe, Olivia Weber, Alexa Aigner, Joe Daily, Ryan Willians, Janie Kashino, Dustin Cobb, Alyssa Chappell, Addison Whipple, Amber Mastey, Katie Krize, Gustavo-Alexis, Kelvin Harper, Maggie Achuff, Kristin Hope, Kahlilla Blyss, Arden Quinn Bucher, Douglas Swift, Max Mikulak, Eliza S, Brandon Loose, Kody Edwards, Brody Hurt, Jay Jay LeBoeuf, Kyah Milne, Nicholas Pagano, Trooper Dante Tareboreli, Carter Wax, Zachary Finestone, Cora McClenahan, Little Roy Gutierrez, Chloe Smith, *Cody Johnson*, Emilio Gravez, Jacob Stovall, Noah Tyler Bell, Shu Qinpet (pet name Xinxin), Jenna Mussolini and Owen Lea, Carson Clark, Juan Santiago Wall, Erik Ludwinski, Layla Grace Marsh, Samuel Thomas Hutchison, Sydney Marie Dudley, Sophie Atay (And Our Big Warrior hero 1st Lt Joseph Helton, USAF - 8 Sept 2009),

-Race Dedication-

  • In Memory of: Samuel Thomas Hutchison, Layla Grace Marsh, Sydney Marie Dudley and Sophie Atay.
  • In Honor of: Jessica Trotter
  • Next Race - TBD
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Gj's Buddies & Angels - Lighting the Way

SAVE THE DATE AND JOIN ME


For more widgets please visit www.yourminis.com

Circle the Lake for the Cure

Circle the Lake for the Cure
Houghton Lake MI - 36 hours for the Cure

Email Grandpa John

Click Here

Friday, April 4, 2008

Another Successful Day - Yes Indeed!!!

Another Successful Day - In many ways…Upon arriving at work, what do I see laying on my desk? Oh, nothing much, just a substantial check for a donation to the Band of Parents and a smaller cash donation. I can’t believe that I just started and already I received $260.00 in donations. I know that won’t happen every week, but I am sure going to try to reach that level again and again and again...To those who donated, I thank all of you for your generosity. For those of you yet deciding what your charity of choice will be for 2008, I ask that you consider “The Band of Parents” as the one you’ll contribute to. And remember no donation is too small. Thanks again.

If you’ll look to the left hand column you’ll see that I’ve added my race schedule for this race season. Some races are set in stone so to speak, while others are under consideration. Whether I run them or not is dependent on how this older body holds up to the training for my ultra marathon, which I am dedicating to all who suffer neuroblastoma. If you know of someone suffering from this dreaded disease, please send me their name, and I’ll add it to the shirt I’ll be wearing race day. It’s just my small way of thanking and identifying my heroes; their courage gives me strength to persevere when things are tough

Well, I have some chores to tend to, so I’ll close for now...till we meet again

God Bless


Gj
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Wednesday, April 2, 2008

An Introduction and....

Greetings to all from my humble internet abode. Let me introduce myself. I am Grandpa John but most all of my friends call me Gj. I am closer to 60 than I am 50, so should be able to deduce that I am at least +55… so just keep guessing. But if you really need to know, I am 57.

I am happily married to my wonderful wife, Missus Gj. I can't say enough good things about her. Suffice to say that she supports me whole heartedly in most all of my endeavors. That is, unless they are too hair brained, at which time she becomes my grounding rod and sets me straight with a loving hand.

Since I am just setting this blog site up please visit often as I am dedicating myself to helping raise funds for the “Band of Parents.” A great organization made up of parents who have children suffering from Neuroblastoma who are dedicated to raising funds for research and drug testing / development and ultimately a cure. I could go on and on trying to explain how horrible this disease is, but I think it more appropriate to have those with so much more knowledge than I explain it to you. For more information, please follow the “Band of Parents” link and while you’re at it, a donation would be greatly appreciated too.

And part of my effort also involve s training to complete my first ultra marathon event the “Dance With Dirt,” 50 K held in Hell, Michigan, September 6, 2008. I am dedicating all of my training and the race to the children who suffer from this horrible disease. And as you read you you’ll see that I will be tracking my training progress and from time to time gloating about the children I am now beginning to know. So stay tuned – I will have my training log posted in a few days and you’ll see it’s no easy task to undertake. Yet, regardless of how difficult it becomes, I still have it very much easier than the children ravaged by neuroblastoma.

They are my heroes giving me strength to go on when my entire being says stop! I am blest…

OBTW - I ran a 6 mile training run today.

God Bless and Thanks for stopping by

Gj
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